Showing posts with label Fidel. Show all posts
Showing posts with label Fidel. Show all posts

Saturday, June 22, 2013

Night at the Theater

Hey everyone! Hope you are having a splendid weekend. Wanted to share about my adventures last night! Alex, Jack, Fidel and I went to World War Z at Aksarben Theater and then went to Ponzu for some sushi. Alex and Fidel have been missing out on their quality time together because school is out so it was great to finally reunite them after a month of not seeing each other! Fidel's mom dropped him off at the theater after we stopped and got some snacks at the gas station to smuggle into the theater (everyone does that right??) I had only seen a brief preview of the movie and was excited to see what all the talk was about (oh and Brad Pitt isn't bad on the big screen either) Since we sat in the handicap area at the front of the theater we were right in the action and I jumped several times! The movie had a lot of great stuff that is interesting like epidemics, zombies and oh yeah Brad Pitt ;)


 I thought the movie was pretty smart and also had some great scenery because part of the movie took place in Jerusalem. I would love to go there some day just to see all the history and be right in the setting of the Bible! I won't give away to much of the movie because I recommend you go check it out for yourself but it was one of those movies where the entire audience clapped at the end! Plus Jack said while we were walking around Aksarben that he felt like people were going to come up and bite him..Haha! 
After the movie we strolled around the area and even were at the front gates of the Gay Pride Celebration that was happening there. The music sounded like a lot of fun and we kept teasing Alex that he should go in there to see if he would get hit on ;) It didn't help matters that he was wearing a colorful tank to show of his muscles! Fidel thought our jokes were hilarious and missed poking fun at Alex like he would everyday in school. We were hungry and the only place open at 10:30 pm was a sushi place so we had some edamame and lobster ragoons to start off with. Fidel had never had edamame before so Alex showed him how to eat it which was pretty cute because Fidel didn't quite understand how to get the bean out of the pod.


Alex and Fidel shared a steak and french fries and Jack ordered the nasty seaweed stuff which turned out to be not that bad ;) I tried a couple of the tuna sushi rolls and Fidel tried sushi for the first time and enjoyed the ones with avocado! 
Best Buds!!
If you remember this post  I shared about Fidel and his back surgery. Fidel recently had a follow-up appointment and the doctors said he was doing great. His mom even shared this photo of the before and after x-rays and it is pretty remarkable to see! Medicine is truly amazing and I'm so glad to hear Fidel say "I feel great" when he talks about life after his surgery. Him and his mom want to go and talk to other kids with muscular dystrophy that are trying to decide whether or not to have surgery so they can tell their story about his great outcome! He is such a thoughtful kid and an inspiration to so many!!

BIG Difference!!

Monday, May 6, 2013

First Weekend in May: Insomnia & Sleepovers

Hi everyone! Hope you are having a great weekend and a wonderful start to your Sunday! We are having a great but busy weekend and it is going splendid minus my case of insomnia which is normal for me I suppose. I can not wait to be on the day shift (which who knows when that will happen!) I will explain why we are having such a busy weekend. Fidel, the boy Alex takes care of at school, is staying here this weekend with us because his mom is having a baby! She had a little baby boy named Victor Alexander yesterday and Alex offered to take care of Fidel this weekend. We are glad to have him here because he is such a great kid and always makes us smile. We are finding out what it is like to have a child..haha! If you remember from an earlier post, Fidel has Muscular Dystrophy so he has very little control of his movements and can only really move his head, hands and toes. He has to stay in our basement because his wheelchair can't be carried upstairs so Alex and I have been switching off being downstairs with him. Friday night he went to Iron Man 3 with Alex and Cody and then played video games. He is enjoying staying up late ;) And then yesterday when I got home from work I fed him breakfast and slept downstairs so that if he needed anything he could just wake me up. Alex was back on duty after he got of work and helped Fidel eat supper. Then last night Eric, Joel and Zach came over to watch basketball and play videogames with him and they also helped Alex move him because it is a two man job.
Fidel is a great kid and he is always saying something funny! The little things we take for granted like just being able to itch our nose or move our arm to reach something, he isn't able to do which is a big reality check. I take care of patients in the hospital that have MD or are paralyzed but in the hospital there are luxuries like automatic beds, lifts and lots of manpower available when moving patients. But in the real world everyday can be a struggle and you have to get pretty creative. Fidel counts on us and it is crazy (and kind of scary) knowing we are responsible for him this weekend. However I wouldn't trust anyone else to do the job but Alex! He is so great with him and Alex knows that there wouldn't be anyone else to take care of Fidel while his mom is in the hospital. Alex did not even hesitate when he knew Fidel would need a place to stay this weekend and that is one of the reasons I love him so much!! Alex has patience and strength that is beyond measure and I'm so thankful I get to see how he interacts with Fidel because it is truly something beautiful!

I have 5 days off of work so I'm sure I will add some items to my shop and finally get some exercising in! I can't wait to take a zumba and kick boxing class or go for a run if it gets nicer outside. Really wish this weather would start acting like the month of May instead of the month of February. Today I'm hopefully going to Sioux City with Kendra to Josh & Jamie's graduation parties and would love to stop by my sister's house :) But I will post all about that later I'm sure!
Have a blessed day! and remember to check out http://www.etsy.com/shop/SomethingBeautiful19

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